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Christmas 2021

These couple of months have been extremely tough on Jordan. On 09/20/21, he was admitted due to rapid eye movements. Things began to get worse. He was unable to focus from far by away or close by. He lost mobility - he was unable to sit up, stand or walk on his own. He went from Valley Hospital, was then transferred to Columbia Presbyterian Hospital and later to Children's Specialized Hospital. Currently, he is home, stable, able to stand and walk. Thankfully with the right treatments and decisions from various Doctors he was discharged on Nov. 10th. He was diagnosed with OMS which stands for Opsoclonus-Myoclonus Syndrome. Let's bring a little bit of joy to him while he is still battling this Syndrome. Thank you for your best wishes.

Last update Dec 19, 2021

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